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HITEQ Highlights: Lived Expertise and Data Management: Trauma-Informed Approaches and Perspectives

Year Developed: 2024

Resource Type: Archived Webinar.

Primary Audience: Administrative Staff Clinicians PCAs
Secondary Audience: Board of Directors C-Suite (CEOs, CFOs, CIO, COOs, CMOs, etc.) Enabling Staff Outreach Staff

Language(s): English

Developed by: HITEQ (See other resources developed by this organization).

Resource Summary: This webinar explores why and how lived expertise must be sought after and valued by health centers and allied organizations to improve every stage of the data management process from collection and analysis to data sharing, access, and decision-making, including discussion about Information Blocking rules and navigating the tension between reporting and regulations.

Resource Details: Health centers individually and collectively manage large amounts of data. Patients at health centers are asked to fill and refill out paperwork, surveys, and assessments. Many patients and providers report that the repetition of collecting the same data points can be discouraging, even appearing to undervalue their experiences. In some cases, repeating patient medical, housing, and personal histories can create harm and re-traumatization. In this webinar we explored why and how lived expertise must be sought after and valued by health centers and allied organizations to improve every stage of the data management process from collection and analysis to data sharing, access, and decision-making, including discussion about Information Blocking rules and navigating the tension between reporting and regulations. Additionally, we discussed the nexus of racial equity and lived expertise in data management. How data collected or used improperly or carelessly have the potential to harm. The webinar incorporated recommendations and practices that can be implemented in the short, medium, and long term to use data to reduce and limit the chances of re-traumatization.

Resource Topic: Health Information Technology (HIT)/Data, Workforce, Promising/Best Practices

Resource Subtopic: Electronic Health Records (EHRs), Data, Tools and Dashboards, Implementation Feasibility, Operational Feasibility, Engagement.

Keywords: Data Collection, Management, and Analytics, Health Information Exchange (HIE), Patient Demographics, Privacy/Protected Health Information (e.g., Health Insurance Portability and Accountability Act (HIPAA)).

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $6,625,000 with 0 percentage financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.