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"Data Disaggregation: Principles, Promising Practices, and Lessons Learned To Advance Health Equity" Report

Year Developed: 2024

Resource Type: Publication.

Primary Audience: Administrative Staff Board of Directors C-Suite (CEOs, CFOs, CIO, COOs, CMOs, etc.) PCAs
Secondary Audience: Clinicians Enabling Staff Outreach Staff

Language(s): English

Developed by: Association of Asian Pacific Community Health Organizations (See other resources developed by this organization).

Resource Summary: This report outlines the data disaggregation principles, promising practices, and lessons learned based on an environmental scan and feedback from health center stakeholders in Asian American (AA) and Native Hawaiian/Pacific Islander (NH/PI)-serving health centers.

Resource Details: In 2023-2024, AAPCHO conducted an environmental scan of racial, ethnic, and language data disaggregation practices at community health centers. AAPCHO surveyed key health center stakeholders through a questionnaire and interviews about their organization's data disaggregation principles, promising practices, and lessons learned. The environmental scan also included a literature review to inform the development of disaggregated data collection protocol training resources for AA and NH/PI communities at health centers.

Resource Topic: Health Information Technology (HIT)/Data, Quality, Special and Vulnerable Populations

Resource Subtopic: Quality Assurance, Quality Improvement, Social Determinants of Health (SDOH), Health Equity.

Keywords: Access to Care, Accountable Care/Accountable Care Organizations, Asian Americans, Native Hawaiians and Pacific Islanders (AA&NHPIs), Clinical Coding, Community Health Workers, Data Collection, Management, and Analytics, Documentation, Limited English Proficiency (LEP), Patient Demographics, Policies and Procedures, Research, Uniform Data System (UDS).

This project is supported by the Health Resources and Services Administration (HRSA) of the U.S. Department of Health and Human Services (HHS) as part of an award totaling $6,625,000 with 0 percentage financed with non-governmental sources. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by HRSA, HHS, or the U.S. Government. For more information, please visit HRSA.gov.